Heather, my 14-year-old daughter, has severe CRPS which has left her completely bedridden unable to even turn in bed unaided. Every sound, touch or even a gentle breeze can set off extreme pain. A simple thing like me putting on a light switch in a different room causes her agony. She stays in bed all day and cannot go to school anymore as it is simply too painful.
She has now missed out on 3 years of her life and just wants to be a normal teenager. This a girl who was a star gymnast from a young age. We have tried every treatment option available to us in South Africa and the relief if any is always short-lived.
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LAST year, while her peers at Westering Primary School were excited about their future as they started Grade 7, 13-year-old Heather Botha was diagnosed with an incurable chronic disease, known as complex regional pain syndrome (CRPS), and was undergoing treatment for this medical anomaly.
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A sprained ankle has lead a teenage girl to suffer ‘fire-like’ pain that doctors have compared to childbirth, leaving her seizuring for three hours and unable to bear a drop of water on her body.
As a sporty child, Moana Ruhfass was used to getting injured, but after the seemingly innocuous injury at athletics when she was 11, she didn’t bounce back.
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A teenager suffers “fire-like” pain doctors have compared to childbirth and suffers three-hour seizures as a result of a rare condition .
After Moana Ruhfass sprained her ankle as a sporty child, she later suffered pain in her leg, hips and shoulder.
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The family of a 16-year-old girl fighting an excruciating disease is seeking the public’s help to cover the cost of a supposed miracle treatment she so desperately needs.
Moana Ruhfass was diagnosed with chronic regional pain syndrome (CRPS) in 2013 when she was just 11 years old, following a “seemingly innocent ankle injury,” her father, Manfred, wrote on GoFundMe.
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Moana Ruhfass was a talented, passionate young dancer who had everything going for her – until she suffered an ankle injury that ultimately turned her life upside down.
As a sporty child, she was used to getting injured, but this time was different. What was thought to be a seemingly innocent ankle injury led to a life-changing, debilitating, insidious disease. At just 11 years old following an athletics event, Moana was diagnosed with complex regional pain syndrome (CRPS).
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Our daughter Moana was a wonderful child, every parent could wish for. She was happy and smiling. She was a talented and passionate dancer. She had everything going for her, but that all changed after a seemingly innocent ankle injury changed her life forever. Moana has since been diagnosed with Chronic Regional Pain Syndrome (CRPS) a debilitating, insidious disease.
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@RSDA on Twitter: “Since ’09, we have approached CRPS cases by rehabilitating the Central Nervous System. We are excited to share our common findings w/ the community”
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Spero Clinic is a Fayetteville, Arkansas-based clinic that specializes in treating patients from all around the world with Complex Regional Pain Syndrome (CRPS) by rehabilitating the Central Nervous System.
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Leading holistic doctor, Dr. Katinka van der Merwe‘s new book, Taming the Beast: A Guide to Conquering Fibromyalgia, helps patients understand fibromyalgia.
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Start your patient journey with the Spero Clinic's neurologic rehabilitation program.
